Alliance for Childhood Cancer

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Childhood Cancer Survivorship Research and Quality of Life Act (H.R.2109)

The Childhood Cancer Survivorship Act

The Alliance for Childhood has endorsed the Childhood Cancer Survivorship Research and Quality of Life Act (H.R.2109).   The bill, known as the Childhood Cancer Survivorship Act, would lead to improved health for the growing number of survivors of childhood cancers by improving and expanding the delivery of medical and psychosocial care to survivors of childhood cancer.

Summary of the Childhood Cancer Survivorship Act

Take Action!
The Alliance has organized a number of materials to assist in advocating for HR2109.  The materials include:

If you are interested in advocating for this legislation please contact us.

Childhood Cancer Survivorship Research and Quality of Life Act (H.R.2109) Introduced
The Childhood Cancer Survivorship Research and Quality of Life Act of 2009 was introduced by Representative Jackie Speier (D-CA) and Representative Mary Bono (R-CA) on April 24, 2009

The bill, also known as the Childhood Cancer Survivorship Act, would lead to improved health for the growing number of survivors of childhood cancers by improving and expanding the delivery of medical and psychosocial care to survivors of childhood cancer. 

Specifically, the legislation would:

  • Establish NIH cancer survivorship programs, including grants to address health disparities in childhood cancer survivorship.  

  • Create grants to fund clinics for comprehensive long-term follow-up services for survivors of childhood cancer.
  • Provide funding for grants to improve access to care for survivors of childhood cancer.  
  • Expand Centers for Disease Control and Prevention cancer control programs, including programs aimed to provide guidance to states and encourage them to improve systems of care for survivors of childhood cancer. 
The Alliance has endorsed this legislation and would like to thank Representative Speier and Representative Bono Mack for their commitment to improving the quality of life of childhood cancer survivors.

Alliance Press Release
Rep. Bono Mack's Press Release


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